National Organization for Rare Disorders (NORD): Summary

National Organization for Rare Disorders (NORD)

Healthcare, Non-profit, Rare Diseases, Advocacy

NORD empowers individuals with rare diseases by providing essential resources, support, and advocacy to enhance their quality of life.

NORD is a federation dedicated to supporting individuals with rare diseases through advocacy, research support, and education. It aims to improve the health and well-being of people with rare diseases by driving advances in care, research, and policy.

Patient Assistance Programs for medication and support; Comprehensive Rare Disease Database with information on 1,200 rare diseases; Centers of Excellence for diagnosing and treating rare diseases; IAMRARE® Program for researchers to understand and treat rare diseases

NORD is most valuable for patients seeking assistance with medication access, caregivers looking for support resources, and researchers needing collaboration opportunities.

Established network of patient organizations and advocacy groups; Comprehensive resources and support tailored specifically for rare disease patients; Strong focus on policy advocacy to influence legislation affecting rare disease care

NORD's strengths lie in its extensive network, commitment to patient advocacy, and comprehensive support services that address both immediate and long-term needs of rare disease patients.

NORD positions itself as a leading advocate and resource provider for the rare disease community, focusing on education, support, and policy change.

The primary audience includes individuals diagnosed with rare diseases, their caregivers, and patient advocacy organizations.

Donate to NORD

• Rare Diseases

• Patient Advocacy

• Research Support

• Community Engagement

Advancing practical, meaningful, and enduring change for people with rare diseases.

Supportive, informative, compassionate

NORD uniquely combines advocacy, research support, and community engagement to address the multifaceted challenges faced by individuals with rare diseases.

NORD's brand identity is centered around empowerment, advocacy, and community support for individuals affected by rare diseases.

1983-05-01

• Abbey Meyers